Australian Mesothelioma Registry
Australian Mesothelioma Registry (AMR)
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Information for Doctors

If your patient has been diagnosed with mesothelioma, you may be approached from the relevant state or territory cancer registry to confirm their eligibility to participate in the AMR. We encourage you to respond to these requests promptly. If you have any questions, please call the AMR Helpline.  

Support of health professionals is vital in the recruitment process and promoting knowledge of the AMR to people diagnosed with mesothelioma. Participation in the AMR involves the patient completing a postal questionnaire and telephone interview.

Important occupational and environmental asbestos exposure information cannot be collected without a general practitioner or treating doctor considering each patient’s suitability. This involves reviewing documentation sent by state and territory cancer registries. This review gives us permission to contact the patient, knowing they are well enough to participate in the recruitment process.

The AMR brochure for health professionals can be found here .

 

Patient recruitment process in states and territories

The patient recruitment processes vary across the states and territories in line with the state or territory ethics approval or patient recruitment protocols. In the Northern Territory doctors need to return a completed consent form to the relevant cancer registry to indicate consent. South Australia, Queensland, Victoria, Tasmania, New South Wales, the Australian Capital Territory and Western Australia are operating on a ‘passive consent’ (opt out) model. A passive consent model is one where if doctors do not respond within 3 - 4 weeks, consent is assumed and the patient is contacted.

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